One of the issues with being chronically ill fabulous is the exhaustion. You can’t win. You either are having a flare/bad day when you can’t move, or you’re paying for having a good day, and you can’t move.
I am trying to get up and atom (hopefully someone will get the joke), but it’s a never ending cycle for me. I need two weeks vacation and six gallons of coffee. Some days I’d gladly take the vodka too, even though I don’t drink anymore (toddlers man, toddlers).
I am happy most of the time, even if I am exhausted. I just don’t want to be tired. Or chronically ill. I want to be fabulous without the chronically.